About Us

The Nemaline Myopathy Foundation was founded in June of 2001 and is a 501(3) non-profit organization committed to:
  • Promoting and supporting research into the causes, treatments, and cure for Nemaline Myopathy
  • Providing support and education for those affected by Nemaline Myopathy
  • Improving the quality of life of those diagnosed with Nemaline Myopathy
  • Promoting public awareness and understanding of Nemaline Myopathy